I feel like I have litterally been left to die sometimes. With the pain of the wisdom teeth on top of everything else, I just don’t know how much more I can take it.
Ok so the wisdom teeth might get fixed soon. I have surgery scheduled for Thursday, but I don’t know if they will operate while I’m still sick. They didn’t mention anything about it when I was there last week, and I was sick then too.
So I have a headache because of this cold. It’s like when your head feels like a bowling ball and its just so hard to keep your eyes open. My nose is all stuffy still, I have this horrible cough way down deep in my chest. I am actually afraid that it’s going to turn into bronchitis because this is how it sounded once before. Because I am sick, I have a fever blister on my lip and my God does that hurt. I just wish the stupid thing would go away and leave me alone!
On top of it all, you got the face that feels like someone has beaten you with a 2 by 4 because of the impacted wisdom teeth. Joy huh?
Ever been sick and had a little “Curious George” running around? Isaiah, that’s his new nickname. He wants to know “what everything is. What does it do? Can I do that too? Ooh look what I’ve got here, mommy! Did you know this comes off if you pull it hard enough?” These are the thoughts running through my sons head. Exhausting when you already aren’t feeling well.
So, are you guys tired of hearing me complain yet? I just can’t wait for the day when I feel normal again. Is there such thing as normal? Anyway, normal for me will be good enough.
Holly
Can you say ouch? Wisdom teeth are evil little creatures. All four of them are impacted and causing so so so much pain. They’ve been hurting for a year but within the past two months it’s become excrutiating!
I went to see an orla surgeon today. There are no oral surgeons here in Asheville that take Medicaid. The closest one was in Morganton. So I went there, what choice do I have? I do not like this guy at all. He is a jerk and cocky and I don’t like cocky doctors. Oh yeah, he talked to me like I was about 3 or 4?
Ever heard of here’s your sign by the comedian Bill Ingvol? Well this guy needed a sign, several of them. He’s reading my chart wants to know my medicines I am taking. He reads “celexa” he asks me, “what is the celexa for?” I just kind of make a funny face and like, “uh…depression? That is usually what anti-depressents are for.” Then he got pissy saying that I didnt’ write depression down as one of my problems; I just put NF2. So I rolled my eyes and he said “what’s the prilosac for?” By this time I was thinking that he didn’t go to med school after all. Anyone know that prilosac is for acid reflux or stomach issues. Then my cell phone rings. I didn’t hear it and I didn’t feel it because it wasn’t on me, it was in my purse. He panics and tells me that I can’t have my phone on in a doctor’s office. I thought he was going to stroke out right there. I ignored him and just didn’t even ecknowledge the phone ringing, told him to go on. He said that someone must drive me there and drive me home. I told him I don’t think they want me driving anyway. I think this went over his head? Askes me how well I can see. Tell him I’m totally blind. That threw him off. He didn’t know this? “Ok so I can’t show you these ex-rays.” I said, “Nope but I dont’ need to see it. I know exactly where the pain is.” I just wasn’t impressed.
So I have surgery scheduled for Thursday, October 4 to get all 4 wisdom teeth cut out. Hopefully the pain will go away. I know it will be very painful when they are taken out, but then I should be pain free, in the mouth area anyway.
Also I’ve had a cold and I haven’t taken any medicine for it. I’m letting my body fight it off, trying to build my immune system back up. I think the fever finally broke because I am super hot. But I’ll make it.
That’s all for now, I’ll write again soon. Take care all my readers!
Holly
Wow, I didn’t know that you could get the MRI pics on to the computer. Yvonne had some pics on her blog so I asked her how to do it. Well, I couldn’t find what she was talking about. So I just copied the entire cd to my harddrive. There is an executable file you can run and it will show all of the images. I zipped it up and sent it to her so she can take a look at my brain and tell me what she sees. The doctors don’t tell me the whole truth, only the ones that are to be concerned with. Other folks can look at their scans and tell if they are flooded with tumors or not that bad. So I’m hoping that Yvonne can tell me a little more about it. I know she isnt’ a doctor, but she’s looked at her own scans for a while she will be able to know if it’s pretty bad or not.
I zipped it up, it’s still quite large. It’s about 240MB zipped. Better than 540MB I suppose. It’s amazing that someone across the world can look at my brain! Especially without waiting forever for it to come to them in the mail.
Do you remember what you were doing seven years ago? I thought it would be just another normal day. Boy was I wrong. It was anything but, for us in the states.
I was in my second hour class, speech. One of the students stood up and told us what had just happened. I guess he was listening to the radio or something instead of paying attention, but anyway. He stood up and told us, we all thought it was a joke. Then it came over the P.A. system and All of the teachers turned the TVs in their rooms on.
We cried for all of those people. How can people be so cruel? All in the name of terrorism. They wanted to take America down, and thought they would accomplish this by hitting the trade centers and the capitol. Luckily for the brave souls on flighted United 93 over powered them and the plane crashed before it reached the white house. A lot of countries don’t like us. Why? Because we are the strongest country and they hate us for that. But it’s so depressing to think all of those people lost their life because some idiots hated America.
I met this blind guy that worked at the trade centers. He was there when the planes hit. He and his guide dog got out safely. I can not even imagine what he went through. Trying to get out, relying soully on your dog. Now that is faith right there. That dog was excellent and got him out. Slow going between the crowded stairs, the smoke, not knowing when the fire was going to cause the steps under you to collapse. This guy is so strong to go on living like he does. I don’t know if I would be able to. I would be too shaking up by the whole experience.
I pray for each and every one of the friends and families who lost people on that horrible day that no one here will ever forget. There is nothing anyone can do to make up for the deaths and the falling economy. We will suffer for this for a long while. I hope one day America can overcome all of the wars. But, no one will ever forget 9/11.
God bless you all!
Wow am I ever busy next week. Monday I meet the technology specialist for the state services for the blind. We will go over all things, see if I need anything and also work on preparing for the future when I am deafblind completely. Tuesday I have orientation and mobility with the state as well. The instructor seems a little goofy, so I just hope he works good with me with my balance and hearing issues. Wednesday I have a meeting with the deafblind specialist for the state and hopefully she’ll help me prepare as well. Thursday I have physical therapy. Nothing Friday and hopefully I get to sleep in on that day.
Today Edward and I went to Radio Shack and got him some noise canceling headphones for work. He wantsto listen to a book at work but he can’t because it’s too noisy so usually he just ends up listening to the radio. Now with these he should be able to listen to whatever he wants. I also got a new headset for my computer so I can sing some more. I want to put together another CD for Isaiah to always have before I lose my hearing. I made him a Christmas CD this past Christmas. For him and my parents that way they will always have me singing my favorite music.
After we went to Radio Shack we went to CVS to get some more meds for me. Our cab driver was really nice and he didn’t charge us for waiting at Radio Shack which is amazing, because usually they bleed all the money they can out of you.
Edward went and found the exercise room today so tomorrow I’ll go down there with him and probably start working out at least 3 times a week and try to lose some weight!
Later on Edward took the bus to the store to pick up some soda and chips. I made spaghetti for supper tonight and we just got off the Webcam with Isaiah. He’s such a sweetie! I miss him already. He went to my parents last week to spend a little bit of time with the grandparents. I know they enjoy having him around.
But that’s what has been going on here and I’ll be back another time to write more.
Holly
I’m actually thinking of going to college or some schooling. I’ve been thinking about what I want to do. I think I’ve decided I want to be a massage therapist. I’m going to call a few schools next week and see what all the requirements are, how long it takes to become certified, and all that. So yay wish me luck!
Holly
Oh boy folks. My last couple of days have been terrible! Tuesday I had to go to WIC and then to the dentist. Well I scheduled a ride last Wednesday with Mountain Mobility, it’s sort of like the bus system but for disabled people that does curb to curb service. They are allowed to have an hour and 15 minutes window. So say the appointment is at 1 they have to get you there at least by 12:45, so from that they have an hour and 15 to play with. so they could pick you up as early as 11:30 or later closer to actual time. They get there and are only required to wait 5 minutes and if you are not out there ready they can leave and write you as a no-show. If you get 3 no-shows you lose your service.
So Tuesday I had a trip to the health department in the morning to pick up the WIC. Mountain Mobility picked me up at 8:00 and I got to the health department like at 8:30. My appointment wasn’t until 9:15. This is normal for me to have to wait forever. But the WIC office got me in and did what they needed to do actually early. So I was ready to leave around when my sscheduled appointment was. Well last time I was there they took forever, so i scheduled my return pick up for like an hour and a half after the appointment. So I waited outside for an hour and 15 minutes even though I called dispatch and told them I was ready sooner.
So they drove me back home and I had a little bit of time to do a few things. Then I had to go to the dentist. Appointment was at 1, I didn’t want to be considered a no-show and since I can’t see them from the window or hear if it’s them I have to be outside waiting. I went out at 11:30 because they could get there that early. Waited and waited, no bus. So at 12:30 I call dispatch and tell them I still don’t have a van and my appointment is at 1, I have to be there by 12:45 to fill out papers. They promise a bus asap and I continue waiting. Finally the driver shows up. I swear we hit every red light there was while going to the dentist. I get to the dentists office at 12:59. The driver is an older man and wants to escort me to the counter so I allow him even though I usually find the counter by myself. The lady immediately starts talking to him telling him that he’ll have to help me fill out some papers. He tells her that he can’t, he’s just the driver and all this nonsense. I speak up then and say you’ll have to get someone else to help me fill them out or fill them out yourself. Then she proceeds to talk to my driver! By this point I was getting irritated. She tells him that they may just have to take me home and he explained how the service worked and that I already have a pick up time scheduled so I’d have to wait. I was like, “what? Go home? I’m confused. Go home because I can’t fill out the papers?” She tells me a bunch of crap about how they don’t have the man power to help me. I was like “man power? to fill out some papers? It won’t take more than 5 minutes.” she tells me it’s lengthy, wow a whoel 2 pages! The older gentleman helps me find a chair while the receptionist tries to go find someone to help me.
She comes over to my chair, tells me that she is going to call mountain mobility and let them know that I am ready for pick up. I was like huh? I haven’t seen the dentist yet. She says that noone can help me and I will have to take the papers home and get them filled out and then come back, reschedule my appointment. I said, “all because I can’t fill out the papers you’re going to make me reschedule? And no I can’t get them filled out at home either because my husband is blind too.” That confused her. We argued for about 2 more minutes and she went on about how no she couldn’t do it because it was a legthy form and they just don’t have the time to help me. I argued back that all the time it was taking her to look for someone we could have already had it filled out. Wasn’t getting anywhere with this lady. Asked to speak with her supervisor. She was at lunch. Be back in an hour. Great, I’ll wait.
Finally the office manager came and got me and took me back to her office. Told me that there was just no one to help me and if I’d told them I was blind when they scheduled my appointment they could have scheduled another block of time and had someone there to help me. I said no just get someone to write down the few things I need and that is it. I don’t need a seperate appointment for that. She tried telling me they dind’t have the man power either. I told her if they were that busy, then they needed to hire more people. She said the receptionist couldn’t help me because she’s not allowed to leave the desk and leave the phone unattended. I said great we can fill them out at the counter doesn’t matter to me. She told me no we couldn’t because that would be violating HIPPA. “Well do you know that you are still violating something by refusing to help me fill out these papers?” That caught her off guard. She went on to tell me they were going to reschedule my appointment because it was half past1 by then. I asked her for a written statement saying that they are refusing to help me fill out the paperwork. She wouldn’t do it. I said well I’m not leaving this office until I either see the dentist, or get that written statement.
She called around and got me in at 2 and helped me fill the papers out herself. Hopefully I won’t have to deal with that mess anymore. I had my teeth cleaned and ex-rays and saw the dentist. All four of my wisdom teeth are coming in and they are all impacted. No wonder I’ve been in so much pain. So I have to find an oral surgeon now that will take medicaid and have them all cut out before they cause even more problems.
I got home around the same time Edward got home from work. I told him about my frustrating day and finished off my day pretty good. I was fully intending to file a complaint with someone. I wasn’t sure who I was going to complain to,but I would have figured it out if they would have rescheduled my appointment. I knew the first part of filing a complaint would be proving it so that is why I asked for the written statement. They have to accomidate me and they were not getting that through their thick heads. Many people would have just given in and left, not wasted all of that time. But I was in pain, I knew something was wrong, and I had wasted my time already getting up there and I didn’t want this office thinking that they didn’t have to help disabled people. If we all gave in, then we’d never get anywhere.
Yesterday I called and left a message with an oral surgeon. The only one I could find that would take medicaid is in a town 2 hours away. I was hoping to find one closer. I called my doctor back about a hearing aid. Left a message so hopefully they call me back today. I want to try to get a hearing aid for this left ear.
I’ve been in so much pain for the past week. My wesdom teeth are killing me. My jaw feels like it’s been broken and sometimes I can barely open my mouth. Not to mention I’ve been sick off and on for the past few days. Stomach keeps cramping and so on. So, this has not been a fun week for me. I’m hoping and praying that next week will be better.
Holly
