Hi everyone. Donations are $7,492.
Surgery went well. I went in Tuesday, there was an emergency so t hey didn’t get to me for a while. Once they finally did the doc put some stuff in my IV and I said what’s that? and he said sleepy medicine. And then I was out. Glad he warned me? grrr! anyway, I woke up in recovery and I could not hear. I was freaking out. So they went and got my mom and asked if she knew how to communicate with me and she said, “of course?” So she comes and obviously I’m saying I can’t hear so she signs in my hand and thins talks right into my ear and then I can hear, muffled, but a little bit. Luckily, the more the anesthesia wore off the more I could hear.
I stayed there for a few hours after that and got the pain under control and then I got to come home. I didn’t feel like sitting at the computer too much. The joys of having your belly button cut in to. not~! But I am feeling much better now, the pain is all gone.
Obviously amplified phones do not help me. SO I’m down to talking to familiar voices or using a relay services. I am sending this one phone I have back to hearmore.com because there is no point in keeping it if it doesn’t work for me.
I want to get a hearing aid, but I have a feeling that would be the same way. Sure it would make it louder, but I still wouldn’t be able to understand it. I hate NF2 to the tenth degree.
I ordered some Propalis bio30. Hopefully it gets here soon. I figure anything its worth a shot to try and at least stop the tumor. Japanese doctor found that it shrank the tumors in mice with NF2 so a f ew NF2 people are giving it a try.
The doctor confirmed hat I have PCOS, Polycystic Ovarian Syndrome. So I’ve got another pill to take a day, medformin, to help with the insulin. The thing is most people with PCOS are given birth control pills to keep the cysts in check, but I can’t take the pill because hormones feed the NF2 tumors. So I’m stuck between a rock and a hard place. Not sure what to do now.
Anyway, that is all that is going on with me. I’ll write more later.
Hello everyone. Really late and quick update. I am going to have surgery tomorrow around 11 a.m. to remove a cyst from my rig ht ovary. It was causing pain so I went to the doctor a month ago, they saw the cyst, I went back last week and it hasn’t gone away yet and doesn’t look like it’s going to. So the doctor is going to go in and get it herself. So keep your fingers crossed and I will appreciate all prayers said that there are no complications. I’ll write and let everyone know how I am as soon as I get a chance.
THIS RAFFLE HAS EDNED. THANK YOU.
Draw date is June 1st 2008.
tickets are $3.00USD and CND each.
All proceeds will be donated to Holly for the medical costs associated with her ABI surgery.
Framed print donated
by Dee-Ann Mercer-Wagner.
After the winner has been contacted, Dee-Ann will ship or deliver the print as soon as possible at no cost to Holly or the winner.
Print is framed with black metal and a black matte and measures approx 17.5X24″. Chances of winning is 1 in 1500
ABOUT THE ARTIST
Dee-Ann Mercer-Wagner lives in Alberta Canada with her husband and young daughter she was born legally blind and was diagnosed with NF2 in her preteens shortly
after her mother was diagnosed. She is now totally deaf and at the time no longer drawing because of NF2 complications. She hopes to be able to draw again some day.This print is a drawing Dee-Ann created back in High School.
Please feel free to contact Dee-Ann at
newsilentworld(at)hotmail(dot)com for info regarding buying tickets online
You can buy tickets online thru paypal if you use paypal. Once Dee-Ann receives payment a virtual ticket will be sent to you in email and an official one will be filled out of your behalf and put in for the draw. If you do not have paypal and will wish to buy tickets please feel free to contact Dee-Ann to see if other ways of paying can be met.
Paypal info is for Dee-Ann Mercer at
mercer(at)toast(dot)net or contact her at either address above if you have any questions
Heart4Hope t-shirts. Designed and donated by Yvonne, NF2 patient in Malaysia.
To order, call Holly at:
Phone number 870-598-0155
or 870-324-1454
Click images to enlarge.
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Hi everyone, I am having trouble replying to my comments so I’ll just put it on a post.
Welcome new readers. shirts, I didn’t get a chance to have the pictures put on the blog site it’s self so I just put a link to it in a previous post. But soon I will have Yvonne update the page and put the pics up here and a way to get them. I actually forgot that I haven’t done that. But for now, if you would like a shirt you can email me and we can work something out. mommaholly@gmail.com
There are two shirts. The black surt has the design in white and the white shirt has the design in black. It’s a heart with swirly lines I guess? I’m not real sure people say almost looks like a tattoo. It says heart for hope. the insides of the heart are read on both shirts. There is a link somewhere around here t hat you can use to go look at them.
Yes most of whom say “oh it’s not that bad” or don’t seem to care about my situation are the blind people.
I’m doing physically therapy to try to strengthen my right leg. The quads in that leg have atrophied (sp?) because of a tumor in my lower spine and that is throwing my balance all off. So I am doing PT trying to get it back so I’ll quit walking like a drunk. I think I also have a tumor on my tongue. lol I’m not sure. I don’t know how long its been there but one day I was feeling my tongue for some odd reason and felt a bump and it’s still there. But for now it’s small and I’ve heard that people don’t do anything about them until they get in the way of eating or something. I’ll see if its still here in a month or so then show a surgeon, whenever I find one other than the idiots in Little Rock.
That is all for now I rthink. Take care.
Hi everyone, I am having trouble replying to my comments so I’ll just put it on a post.
Welcome new readers. shirts, I didn’t get a chance to have the pictures put on the blog site it’s self so I just put a link to it in a previous post. But soon I will have Yvonne update the page and put the pics up here and a way to get them. I actually forgot that I haven’t done that. But for now, if you would like a shirt you can email me and we can work something out. mommaholly@gmail.com
There are two shirts. The black surt has the design in white and the white shirt has the design in black. It’s a heart with swirly lines I guess? I’m not real sure people say almost looks like a tattoo. It says heart for hope. the insides of the heart are read on both shirts. There is a link somewhere around here t hat you can use to go look at them.
Yes most of whom say “oh it’s not that bad” or don’t seem to care about my situation are the blind people.
I’m doing physically therapy to try to strengthen my right leg. The quads in that leg have atrophied (sp?) because of a tumor in my lower spine and that is throwing my balance all off. So I am doing PT trying to get it back so I’ll quit walking like a drunk. I think I also have a tumor on my tongue. lol I’m not sure. I don’t know how long its been there but one day I was feeling my tongue for some odd reason and felt a bump and it’s still there. But for now it’s small and I’ve heard that people don’t do anything about them until they get in the way of eating or something. I’ll see if its still here in a month or so then show a surgeon, whenever I find one other than the idiots in Little Rock.
That is all for now I rthink. Take care.
Hi everyone, sorry it has been sooooo long since I have updated. I have been super busy and bouts of depression and just crazy all around.
Mine and Edward’s anniversary was April 16, yay three years now! We went to Asheville North Carolina and had a great time. Edward also had an interview there so we did that and totally love the place! Everyone is so nice, the weather is perfect, and the city is in the middle. It’s not too big like NY but it’s not tiny like Piggott. Edward did get the job though and they said they would hold the position until we figured out my medical stuff.
So, now I have to figure out what to do. We are going tomorrow to Asheville to look for houses. I think Edward going to go ahead and start so that we can be putting back a little money to save up for the fund, he’ll also get medical insurance through his company but House Ear doesn’t take the insurance that he is offered. So no luck there. I wish! So I’ll keep you all informed on that. oh yeah! Nashville, TN said that they would enroll in AR Medicaid and they do the ABI there. Well they lie. I had an appointment for Monday but they can’t get their facts strait so I canceled it. It just irritates me to no end that people don’t communicate.
Isaiah is doing very well. He is 8 and a half months old now, still no teeth! lol. But I think he is teething still, I’m just waiting for one to pop through and bite me. He is also crawling all over the place, getting in to whatever he can, and pulling up on things. Not too much longer and my little boy will be walking!
I go in and out of depression because of this hearing situation. Do you blame me? Ask any of the blind people if they would freak out if they would lose their hearing? They would say absolutely. Now take all the people with NF2 that are deaf, ask them if they would flip if they lost their site? Don’t you know it. So, the next person that t ells me it isn’t that bad I’m going to scream!
Last weekend we had a huge family reunion and a few people bought a shirt and some tickets. Come on people! Buy some of these tickets. Dee-Ann and Yvonne were nice enough to donate the picture and the shirts to me, and now no one is trying to help me? Please Please Please!
Well I am going to fix some lunch and I’ll update later. I’ve gotten about 500 more I think but not certain. I’ll have to count and update with a total next time.
Holly
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