Hello everyone. Sorry I haven’t been writing that often. I have been taking care of Isaiah, talking with the doctor some more, getting ready to go to L.A., making all the arrangements, and it just seems like there isn’t enough time in one day. Donations as of now, that I know for certain is $4,337. I know there is more but I can’t add it up yet. My mom has been selling raffle tickets for a gift card she bought. The drawing is Friday so then all of my family members that had tickets too, should have the money turned n and then we can add it all up. But, this much I know for sure.
I think Yvonne sent the shirts today, so hopefully they’ll be here quickly and can start selling those. Have some friends in canada that are making tickets to raffle off a print that she drew. Hopefully that one will do good too.
I don’t understand why everything has to be so difficult. constantly arguing with Medicaid. I wish I had private insurance. Maybe one of these days I can get it if Edward can get a job. But in order for him to find a job we’ll have to move because there are no places for a blind man to work here.
I’m going to talk to some more people about ideas for raising money. I’ll keep you all posted. Sorry this is short but Isaiah is being fussy. He’s teething so lately it’s been fussy all day. Take care.
Holly
Hello everyone. I hope you are all having a good day. Well now the donations are up to $3,532.07! We’re getting there.
Today I went to wal-mart with my husband and mom. Got lots of baby food. Isaiah has been eating a few veggies and now I think I’m going to try giving him a little bit of fruit. Also got him a sippy cup. My boy is growing up! Also got some more ink for printer/copier/fax/scanner so that I can send and recieve faxes from these hospital places. I am fighting the Arkansas Children’s hospital for my records. For some reason I never get the records I need when I request them. I told them I wanted the genetic testing that I had done in 2000 when I was dx with NF2 so that I can see if they actually found my mutation so I can get Isaiah tested. They sent me a bunch of ENT reports and hearing test stuff. Nothing at all what I needed. Oh well I’ll take the hearing test stuff to L.A. with me because I’m sure Dr. Friedman will want to see how my hearing has been the past 8 years.
Anyway, that’s the small update for now. Take care.
Holly
I’m back for another update. I’ve been trying to figure out more ways to raise money. Trying to think of something I can make or do here at home. So far, no such luck coming up with anything. Any ideas? Yvonne is willing to give me some shirts that she had made for her fundraising but it’s going to cost a lot to get them shipped over seas in a timely manner. So before I have them sent over here, I need to make sure they are going to sell. Going to have someone look at the picture soon. Also, I am going to put a picture up here to show you guys a print that a friend has donated so that I can raffle off. She is legally blind and I think it’s so awesome that she got to draw and do what she loves to do. Anyway that will be coming after we get some more of the raffle details figured out.
The money received as of 12:02a.m. on Feb 14 is $3,469.82 yay everyone! We’re slowly getting there.
I didn’t think I had been getting anything as of late, so I logged into paypal because I got a strange email from them today but it was fishing I think and the balance was more than I remembered. So I looked at the history and there was like 10 and 20 dollars that I had no idea about. I have been sending out thank you emails to anyone that donates even a dollar to me. So if you have not recieved a thank you email from me, I’m sorry but paypal hasn’t been sending me my emails to let me know the person donated. Just know that I appreciate it very much.
AMERICAN IDOL!
I love that show. Even though it is a little rigged it seems, I still like it. What can I say, I love music! Music is my life. I love to sing and anything about music. I hope that I can enjoy music for a long time to come. But anyway, tonight’s idol was the final 24. So next week we get to start voting. It’s amazing how many good people actually got sent home and a lot of people I just didn’t really care for got through.
I guess it’s all about the looks and stuff. We all just need to put a blind fold on and listen to the vocals, after all you can’t see who’s on the radio can you? Not unless you are watching a video or in concert. But I am sick of people winning stuff just because they have the looks or whatever but the voice is terrible.
Sorry this is my blog for like medical stuff but I also want to write and let you all know my life and how my days go and just everything in general.
Isaiah was really whiny today. I don’t know what the deal was, yesterday was whiny too. Maybe he’s about to get a tooth in? I don’t know but I don’t like it. And ever since he started eating veggies he wont’ eat his cerial. *sighs* parenting can be rough sometimes, but I wouldnt’ trade it for anything.
Ok this was a really random post, but hopefully you enjoyed it. Everyone take care!
Holly
I’m back to write more on what I’ve been doing. Well to start off, I will let everyone know how the donations are coming. I have gotten $3,148.29.
I have an appointment to go see Dr. Friedman on March 4th. I am going to go out there, meet him, and get a test ran on my ear to get a little more information. My husband and I have set up the reservations at the Setan Guest Center there at the hospital. Now I am applying for a free flight to get out there, even if I can get it discounted that would be great.
So, the fundraising. Yvonne is sending me 1 box of t-shirts to sell. They will take a bit to get here, but when they do I will sell those and then send her some more money to ship the other two boxes. My husband is looking for someone to play with and do a concert type thing. He can play with anyone and was in many many bands while living in Texas. If I can get a concert thing put together, maybe I can do a concession stand as well and bring in some profit off of that.
I let my sister know about this blog and she’s thinking of ways to help as well. I just want to let you all know that I appreciate your support.
I haven’t been writing in this thing very often because I’ve been busy trying to think of stuff. A few days ago I felt something odd in my right breast so I went to the doctor and she said she hadn’t felt anything like that before. So I had to go get an ultra sound. I went for that today and I won’t get the results for like another week almost. I think Wednesday or Thursday. That is a super long time when you are worried. I just hope I don’t have breast cancer on top of all of this. How much more can I take?
Isaiah is doing excellent. He’ll be 6 months in a week. I think he’s teething because he’s slobbering all over me and biting me every chance he gets and everything goes in the mouth. He loves music and I hope that I can sing to him for a long time to come. He’s getting to where he wants to make noises like he is singing with me. Ever since he was born, he loved music. He got his Daddy’s gift. yay!
My husband is being great through all of this. I don’t know what I would do without him. He says that he will stay with me through anything and we will get through it no matter what it is.
So that’s an update on my little family out to conquer whatever stands in our way. *smiles* God bless you all.
Holly
