One of the many things I can’t stand is relying on people.
It’s not that people don’t do what I wish or what I ask them to. It’s that they will do it when they get around to it, or forget. I am a very independence person I guess. I would rather do it my self right away.
As I’ve mentioned before, my mind races. I may have fifty things I want to-do but I can’t do them all until these other things get done, and I am waiting on people so nothing I want ge3ts done, when I want it to. It’s a never ending cycle. I just tell people “chop chop. It will only take two second.”
My husband likes to sleep late. I think most blind people have issues where they like to stay up all night and sleep half of the day away. I’m the odd one.
I wake up anywhere from 3 A.M. to 9 A.M. and when I wake up I want coffee.
Well I am in a power wheel chair and coffee is rather hot. Not exactly something I want to spill on myself. So I always have to wake Edward up and have him carry my coffee from the kitchen to my computer desk.
He is very sleepy, and half dead, and it takes me a few tries to get him to do t his.
Today, I made the coffee and then had an idea. A travel mug. I will use a travel mug with a lid on it so that hot coffee will not slosh out on me.
One problem. I couldn’t get the stupid lid off to pour the coffee in because of my grip and coordination being messed up in my right hand. So I went in the bedroom and asked Edward to open it for me. Since he didn’t have to get up, or focus much, it was no problem. He got the lid off for me This is frustration too. I want my grip back so that I don’t have to have people help me open things. I’ll find some adaptive house hold items though so that I can do this myself. It just may be a while longer before I get a chance to do this.
I went back to the coffee maker and poured my coffee. Then I put the lid on it, made sure it was shut, and put the cup in between my legs while I was sitting in my wheelchair.
I was set. The test would come when I went from the kitchen to the living from, over that threshold. It’s a little bumpy, and the coffee would slosh, making it impossible for me to usually do this on my own.
Well, with the travel mug, it was no problem. There was a lid on it and when I went over the bump, no hot coffee came out on me.
It’s very small. Just getting coffee make’s that big of a deal? You bet. Anything at all that I can do myself, it so very exciting. It makes me feel just a little normal.


by Cndy, on 12.22.09 @ 12:10 pm
you know Holly I so understand what you say here. I have lost my right hand and left is affected. i rely on others to do so many little things, its maddening. add to it deaf, balance etc it doesn’t seem fair as you know too well. glad you got your coffee! I know my day is better with it too
by John, on 12.26.09 @ 7:27 am
Ah yes, coffee; a mug or three of that stuff is a must-have for me every morn at the pc. At weekends, I ‘op a drop’ of Baileys into it – a perfect blend! Hope you now enjoy regular self-service.
Holly, you were thinking that most blind people have issues where they stay up all night and sleep half the day away, h’mmm, perhaps this depends on their lifestyle and if they are governed by the clock on a nine-to-five daily job basis. Unlike sighted folk, we don’t need the light on when darkness falls.
Plus, because many of us (blindoes) have no light perception, this affects our circadian rhythm and we tned to take naps in the middle of the day if there’s no pressure on us to perform any tasks, we can do them at a time of our own choosing.
by hollyalonzo, on 01.01.10 @ 5:19 pm
Indeed, the day is better with a cup of hot Java! Some blind folks may hnot have these sleep issues, but a lot that I know do. Most even take a meltonan subplament.