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	<title>Comments on: How Can I Deal?</title>
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	<link>http://hollyalonzo.com/11/298</link>
	<description>Deaf, Blind, And Determined</description>
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		<title>By: Yvonne Foong</title>
		<link>http://hollyalonzo.com/11/298/comment-page-1#comment-263</link>
		<dc:creator>Yvonne Foong</dc:creator>
		<pubDate>Sun, 22 Nov 2009 11:01:32 +0000</pubDate>
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		<description>Hi Holly,

Refering to what you say about people getting frustrated when you ask questions, that happened to me when I first became deaf. People looked impatient and were unable to convey messages to me in a way that allowed me to feel included. But over time, people got used to it and started being able t0 say just the right things. Even stramgers I met in public used to have trouble writing and communicating with me the right way. But now, three years after I became deaf, strangers on the streets that I had nmever met before are able to write to me the moment I ask them to and they instinctively know what information I need when I ask. So I believe we need to be at peace with ourselves and be comfortable with the way we are forst. Once I got used to being deaf and need to ask people fopr information, I must have calmed down and able to ask for help with more patience. This puts people at ease so that they can respond with confidence too.

But if the person needing help is frustrated herself, people will feel suffocated and not know how else in order to satisfy us.</description>
		<content:encoded><![CDATA[<p>Hi Holly,</p>
<p>Refering to what you say about people getting frustrated when you ask questions, that happened to me when I first became deaf. People looked impatient and were unable to convey messages to me in a way that allowed me to feel included. But over time, people got used to it and started being able t0 say just the right things. Even stramgers I met in public used to have trouble writing and communicating with me the right way. But now, three years after I became deaf, strangers on the streets that I had nmever met before are able to write to me the moment I ask them to and they instinctively know what information I need when I ask. So I believe we need to be at peace with ourselves and be comfortable with the way we are forst. Once I got used to being deaf and need to ask people fopr information, I must have calmed down and able to ask for help with more patience. This puts people at ease so that they can respond with confidence too.</p>
<p>But if the person needing help is frustrated herself, people will feel suffocated and not know how else in order to satisfy us.</p>
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		<title>By: hollyalonzo</title>
		<link>http://hollyalonzo.com/11/298/comment-page-1#comment-261</link>
		<dc:creator>hollyalonzo</dc:creator>
		<pubDate>Mon, 16 Nov 2009 12:48:18 +0000</pubDate>
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		<description>I&#039;m not sure if I will get it or not.  I went to an oncologist and he wants a neurosurgeon and a neurologist both to follow me on it.  I met with the neurosurgeon and he is again it.  His reason being that they have never treated anyone with NF with that drug.  I am willing to be their ginny pig so that just maybe I can save someone the trouble of going through this in the future.  I have a hearing test and meet with the oncologist on Tuesday.  I will meet with the neurologist later today. We will find out Tuesday if they&#039;ll go for it anyway since the NS is against it and possibly the neurologist too.  I don&#039;t know.  I will let everyone know what happens.</description>
		<content:encoded><![CDATA[<p>I&#8217;m not sure if I will get it or not.  I went to an oncologist and he wants a neurosurgeon and a neurologist both to follow me on it.  I met with the neurosurgeon and he is again it.  His reason being that they have never treated anyone with NF with that drug.  I am willing to be their ginny pig so that just maybe I can save someone the trouble of going through this in the future.  I have a hearing test and meet with the oncologist on Tuesday.  I will meet with the neurologist later today. We will find out Tuesday if they&#8217;ll go for it anyway since the NS is against it and possibly the neurologist too.  I don&#8217;t know.  I will let everyone know what happens.</p>
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	<item>
		<title>By: Sarah</title>
		<link>http://hollyalonzo.com/11/298/comment-page-1#comment-260</link>
		<dc:creator>Sarah</dc:creator>
		<pubDate>Mon, 16 Nov 2009 05:39:29 +0000</pubDate>
		<guid isPermaLink="false">http://hollyalonzo.com/?p=298#comment-260</guid>
		<description>Sorry Holly. :( I can&#039;t imagine how tough it must be.. you&#039;re a brave woman. Are you going to be able to start on Avastin?</description>
		<content:encoded><![CDATA[<p>Sorry Holly. <img src='http://hollyalonzo.com/wp-includes/images/smilies/icon_sad.gif' alt=':(' class='wp-smiley' />  I can&#8217;t imagine how tough it must be.. you&#8217;re a brave woman. Are you going to be able to start on Avastin?</p>
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