I know it has been a long time since I have written, and I’m sorry. I have just been so occupied with all of these phone calls.
I am not able to use the phone anymore, but I have Edward call and get what I need (or try to). I was trying to get into a drug trial for NF2, and they never called back. He called every day. They finally called back and told him that the trial was full. Lovely eh?
A couple of weeks ago I had Isaiah’s birthday party. He had a blast, and I think all of the kids did. We had a tractor piñata and that went over great. I’m sure someone has pictures of all of the kids trying to break it, I will have to ask and if someone has it then I can put it up here on my blog.
Things are so hectic in my life right now. I have doctors that can’t make up their mind when to remove the schwannoma, looking for trials, playing with Isaiah, trying to communicate with everyone, and so much more. I have found another drug trial and I hope they get back to me soon. If they don’t, I will call and call and call until someone pays attention.
I’m trying to do anything before the tumor is removed because after that there will be nothing that can be done. I hope these people get back to me soon.
by Yvonne Foong, on 08.26.09 @ 2:12 am
HI holly
God has plans for you.
by hollyalonzo, on 08.26.09 @ 6:50 am
Sure wish I knew what his plan is? Where am I gonna end up and what teh world is the reason forputting me through all this? But He never tells me.