HollyAlonzo – Never Giving Up Hope

Deaf, Blind, And Determined

Free At Last

My health has gone down hill. Not only am I deaf-blind, but I am also now physically impaired.

I fall several times a day. I got to where I was walking while basically hugging the walls. I knew if I walked that way and fell, I wouldn’t fall as hard and hurt myself.

I started using a wheelchair while outside. I didn’t feel safe walking on my legs. I knew that if I fell outdoors, I could do some serious damage.

The wheelchair I was using was a manual wheelchair, which is fine except the fact that I can’t do it on my own.

In order for a blind person to know where they are going, they have to use a white cane. Using a manual chair, my arms were busy and I couldn’t use my cane. Edward is blind as well so he couldn’t push me. I had to have someone sighted go with me and push my chair.

We decided that a power wheelchair would be best for me. Then I could steer the chair with a joystick and use my cane in the other hand. Doing this I would finally have independence again!

Only, the wheelchair store we went to refused to give me a chair because I was blind. I was told that “blind people can’t see where they are going. You might run into things or people and you could really hurt someone with a power chair.”

I explained that we use canes to make sure we don’t run into things or people, and some of the guide dog schools even train guide dogs to guide a power chair. Why would t his be in place if blind people didn’t have and use power chairs?

Finally, I went to the doctor and he prescribed a power chair but the venders they tried would not give a power chair to a blind person. Finally they said that the only way they would give me a chair would be a companion chair.

This still wouldn’t work for me, because that would be someone else driving, and Edward can’t do it since he would have no way to use a cane. I would still have to have someone sighted with me, and if I wanted it that way I would just use a manual.

I decided to look around on the internet. One of my friends has a power chair and I test drove his and liked it. I found one like it and bought it second hand, that way no one could tell me I couldn’t have it.

It was very cheap and I got one heck of a deal. But now I have safety and freedom. I don’t have to wait for people to take me somewhere now, even a place as simple as the bathroom.

I could get places fine, I knew how to get there, but my balance was so bad that I couldn’t safely get there on my own without falling.

Denying a person a power chair for the simple fact that they are blind is discrimination. It’s a liability issue. They do not want to be responsible if you “hurt” yourself. Anyone can hurt themselves, blind or not. Will I fight them on this for discrimination? I’d like to because I don’t want to let them get away with it, and maybe I can help someone else having the same problem get a chair. I don’t know if I have time to fight them on this though. With fundraising and my health, I don’t have a whole lot of time left over. I may contact the ADA lawyer my friend knows and see what all it would take before I decide.

I’m just happy I have my own chair now. Driving it isn’t too hard either, although I have to get used to my new size since I am not usually this big. I’ve noticed in just one week I am getting more used to it, so it shouldn’t take long.

4 Comments so far »

  1. by Carin, on 08.09.09 @ 7:14 pm

     

    I mentioned your situation on the GDB lounge, and a girl with a power chair had this to say. She’s in Canada, so I don’t know how much it would help.

    My name is sandy and I have a powerchair. I got the
    chair through medichair.

    Something to google perhaps?

  2. by Rachel, on 08.10.09 @ 10:20 am

     

    Hey Holly!

    It’s Rachel with Matilda. I used to work with Ed at Industries for the blind last summer.
    I got directed to your blog from the GDB lounge site. I’m so glad you were able to get a power chair and that you can now move around freely.
    I’ll be checking your blog for more updates. Tell Ed and Isaiah hi from me.
    Take care!
    rachel and Mattie

  3. by Yvonne Foong, on 08.14.09 @ 1:58 am

     

    Hi Holly,

    Gla that you got the chair you need and you found good use of it.

  4. by hollyalonzo, on 08.14.09 @ 3:22 pm

     

    Hi Rachael! It’s been a long time since I’ve seen you and your parents and sister. I hope you all are doing ok. Yes this chair situation was frustrating but determination always wins. Even if you do make a few people mad. I thought about going to the venders and showing them that “ha, see? I can do this.” but I guess I’ll be a good girl and not a brat. Karen thanks for putting me in contact with another chair user from GDB.

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