We came home from Texas today. Traveling was such a headache. So hard.
I think I married the guy with the thickest head. He’s wonderful but he needs to understand. He’ll say something and I won’t understand. I’ll ask him to sign it . Instead of doing this, he’ll repeat and keep repeating until I get frustrated and say to forget it.
Many times today I wasn’t sure what we were doing I just went with the flow.
We had a lay over between his parents house and Little Rock. Got a sandwich there so Isaiah could have something to eat.
The sandwich turned out to be a wrap. The wrap was 95% lettuce. Not exactly appetizing for a toddler. He took one bite and pushed it away. “nah.”
Got home and saw a message from the representative from HKNC for this area. We are working on finding ways to help me living here in Arkansas and being deaf-blind.
I have a meeting with someone on Thursday from the Services for the Deaf. Maybe then I’ll find out if I can learn more sign language. Right now I only know enough to get by.
Complete deaf-blind is coming nearer. Unless I have a miracle or they come out with a treatment that works ASAP, then it won’t be long. Only time will tell how soon.
by huixian, on 07.18.09 @ 3:58 am
it’s sad to know that u r going to be complete deaf-blind soon. please keep up the hope!
by Yvonne Foong, on 07.19.09 @ 7:33 am
Maybe he wants some attention. Hehehe…
by hollyalonzo, on 07.19.09 @ 9:22 am
Yes it’s sad that I’m going completely deaf and blind, but I have to find the strength to keep going.
Edward gets plenty of attention. But sometimes I think he’s a bonehead. hahaha No, he just isn’t used to this new deaf part of life. He forgets that he has to tell me what he is hearing. One day we’l all get used to it.