Hi everyone. Donations are $7,492.
Surgery went well. I went in Tuesday, there was an emergency so t hey didn’t get to me for a while. Once they finally did the doc put some stuff in my IV and I said what’s that? and he said sleepy medicine. And then I was out. Glad he warned me? grrr! anyway, I woke up in recovery and I could not hear. I was freaking out. So they went and got my mom and asked if she knew how to communicate with me and she said, “of course?” So she comes and obviously I’m saying I can’t hear so she signs in my hand and thins talks right into my ear and then I can hear, muffled, but a little bit. Luckily, the more the anesthesia wore off the more I could hear.
I stayed there for a few hours after that and got the pain under control and then I got to come home. I didn’t feel like sitting at the computer too much. The joys of having your belly button cut in to. not~! But I am feeling much better now, the pain is all gone.
Obviously amplified phones do not help me. SO I’m down to talking to familiar voices or using a relay services. I am sending this one phone I have back to hearmore.com because there is no point in keeping it if it doesn’t work for me.
I want to get a hearing aid, but I have a feeling that would be the same way. Sure it would make it louder, but I still wouldn’t be able to understand it. I hate NF2 to the tenth degree.
I ordered some Propalis bio30. Hopefully it gets here soon. I figure anything its worth a shot to try and at least stop the tumor. Japanese doctor found that it shrank the tumors in mice with NF2 so a f ew NF2 people are giving it a try.
The doctor confirmed hat I have PCOS, Polycystic Ovarian Syndrome. So I’ve got another pill to take a day, medformin, to help with the insulin. The thing is most people with PCOS are given birth control pills to keep the cysts in check, but I can’t take the pill because hormones feed the NF2 tumors. So I’m stuck between a rock and a hard place. Not sure what to do now.
Anyway, that is all that is going on with me. I’ll write more later.
by Carin, on 05.20.08 @ 12:48 am
Holy crap that would be freaking scary. I’m just glad it was only brought on by the anesthesia.
Damn it about the phone! I know there is a hearing impaired blink mailing list out there somewhere. Would it be helpful to have it so you could talk to other people about what phones worked best for them? I know every set of ears is different, but more ideas is good, right?
I phoned the hearing Society, but they’re a confused bunch. They wanted a few days to look around. I’ve given them that. Looks like it’s time to get back on ye old horn and ring a few bells.
Oh the joys of having multiple conditions! Something that would be so easy isn’t.
Hang in there.
by Anonymous, on 07.01.08 @ 10:33 pm
Dear Holly,
I am so proud of your achievements and your courage to take on what the world throws at you. This is the 3rd time I’m writing this because the devil has just erased this twice with “page error”.
Check out on Breuss Cancer Cure, book can be bought from Kinokuniya only. It has removed tumours, cysts, cancer cells from my friends, and Christian brothers and sisters. It is a 42-day fast that is so simple and natural, your logical mind cannot comprehend. You can also google Breuss Cancer Cure, and you will find a large community of survivors.
The herbs can be bought in Singapore (nearest) and Australia, and I’m not writing to sell you anything, except to be messenger from God, that you have the power to cast out your disease. You do not need any more surgeries and drugs for your redeemed body belongs to Christ, and is healed.
The power is in your own hands. God bless you always.
You can YM or skype me: may_chee
by hollyalonzo, on 07.01.08 @ 10:46 pm
Hi there, it’s so great to read your encouraging message. Yes I have been thinking about what you’ve said, how just because the doctors cna’t fix me doesn’t mean God can’t. I’m not sure I know who you are and I tried to add you to skype but coudln’t find you. all of my info is skype: holly-bear aim: hollyalonzo msn: hollyalonzo@centurytel.net and yahoo: princess_holli03 I hope to hear from you more.