I wrote about Edward calling the neorologist’s office and hurrying things along to find a neurosurgeon for my spine.
They never did. I’ve noticed that my fingers are losing a little bit of sensitivity. Not a lot, just noticable when I read braille or try to feel something with my finger tips.
Yesterday I called Edward and told him to call the neurologists office again and tell them the seriousness of this.
I mean, really, I am deaf-blind and can not lose my sense of feeling in my hands or I really will be screwed. I
So he called and got a phone number for the neurosurgeon they were referring me to.
I called there today and I have an appointment at Duke in Raleigh on May 6. It’s not too far away, so hopefull they can stop this loss of feeling before it goes any further.
I don’t even know if there is a problem tumor in my spine, but if there is I want it taken out right away. I can’t afford to lose my sense of touch in my hands along with everything else I am losing.
by Carin, on 04.23.09 @ 1:15 pm
Gees! This is frustrating! I’m glad you got in soon. May 6 will be here before you know it.
by Yvonne Foong, on 04.25.09 @ 10:06 pm
Something like this happened to me in mid-2007. It seemed that neurosurgeons may not be too concerned about minor deficits, particularly if it involves the spine. I guess because the spine is very tedious, the surgeon needs to be very careful in deciding what’s best to do. A second spine surgery did not seem to be a favorable option to me then. If we felt that surgery was necessary, then we would consider cyberknife radiosurgery instead of resecting my spine tumors physically, because I already had one spine surgery years ago. They might have felt that a second spine surgery had higher risk of complication.
So maybe, when you do come to this stage in your decision-making process, consider radiosurgery.
For me, back in 2007, the deficits did not progress any further after awhile so we did nothing more. I went to college as usual and carried on with my life’s undertakings.
by Cheryl, on 04.27.09 @ 12:28 am
I’m really pleased that you won’t have to wait much longer to see the neurologist! I will be praying for all to have wisdom as decisions are made.
Cheryl