HollyAlonzo – Never Giving Up Hope

Deaf, Blind, And Determined

After Surgery

Hey all, as I write this, its 11:34 pm the night of Hollys surgery.
I’m currently sitting at Hollys bedside in iCu and will remain here all night keeping watch on her.
I have to say, that I think that I’m the only person that they have ever let stay with a patient the entire night through.
I want to apolajize for all my mestakes in the last few entries, I know that they have tons of spelling mestakes and I’m not a very detailed writer like Holly, but, I have to say that this is the first time that I’ve been able to actually sit down and write something with out a baby or someone talking to me. It has been very hard to keep you guys up to date on everything while everything was going on, but, I have done my best.
I will say now, that Holly is sleeping very well and that now I’ve got some time to actually write in the blog.
I’m sory if I haven’t responded to all your text messages, but, I’ve done my best to respond to all I can it’s been a very long day but, I still can’t sleep.
Holly should remain in ICU for most of the day tomorrow then some time on friday she will be able to go back up to the fifth floor.
Now, I’m sure you guys want to hear more about why she wasn’t able to get the ABI.
Here is what the doctors told me.
I’ll write it again and spell the big words the best I can Holly will have to do some mayjour editing when she gets out.
ok here goes.
from what they told me the tumer was a very hard one to remove and it had been in the brain for so long, that it had destroyed the balance nerve as well as the coklier nerve where they were going to put the ABI dR. Maclevine said that there was no place to put it in so they were unable to inplant it in the right side.
they said that they might possibly be able to put it into the left side, but, not to wory about that side until absolutely necessary.
Thats all I know at this time.
The one good thing that did come out of this surgery, was thta tthey were able to remove theentire tumer releaving some preasure off the brainstem as well as preserving the facal nerve.
well guess I’ll sign off just thought I’d make up for lost time and let you guys know in a little more detail
Take care and thanks once again for all your suport.
Until tomorrow gn.

8 Comments so far »

  1. by Jamie, on 01.16.09 @ 1:12 am

     

    These updates are more than anyone could ask for. Just thank you! And please do take care of yourself, too. Rest is so important for everyone. It is so reassuring to me that Holly has someone with her in ICU. I am always paranoid in there, and not acting like myself. I usually don’t remember much, but it has always been so important to have someone who understood all my needs to be able to make sure they were met.

    May love surround you all,
    Jamie

  2. by Cheryl, on 01.16.09 @ 2:49 am

     

    Edward,
    Thank you so much for taking the time to write these updates. I know Holly through the blindparenting list and it’s just great to know how she is getting on. I’m truly sorry that they weren’t able to place the implant and I’m sure Holly will be disappointed. It sounds as though she has been in very good hands, though, and i’m just so glad to know that she has come through the surgery well.
    Holly, I know you are very determined, and I am convinced that you will make a good recovery and get on with life in the same energetic and enthusiastic way that you always have.
    You will, of course, remain in my prayers.
    Cheryl

  3. by Paula, on 01.16.09 @ 8:17 am

     

    Thank you and God Bless you Edward for taking time too update us here!
    Kim too for updating the crew sight as well too.
    You have been awesome!!!
    I hope now Holly is letting her body heal and rest you can rest too now and take care of yourself as well.
    Thats awesome you can be with her in ICU… My family was right there for the 3 days I was in ICU. All I did was sleep and snore! lol!
    Then my daughter stayed with me 24/7 when I got too a regular room.
    Prayers and strngth are with you both!

    God Bless

    love & hugs
    Paula

  4. by Georgina, on 01.16.09 @ 8:32 am

     

    Thanks Edward for keeping us up to date on how Holly is doing. I also know Holly through the blind’s parents list. I’m sorry that they couldn’t put in the implant.
    Georgina

  5. by Sarah, on 01.16.09 @ 8:47 am

     

    Hi Edward,
    Thanks for keeping us informed as to Holly’s progress. My heart breaks for her that she wasn’t able to get the ABI, as I know she wanted (and needed( it so badly. She was trying to get this surgery for so long. She is a strong woman though so I know she will get through this latest obstacle. Sending lots of thoughts and prayers her way for sure.

    Sarah

  6. by Carin, on 01.16.09 @ 9:57 am

     

    Edward, don’t even try and beat up on yourself for not being able to respond fast enough, etc. We all appreciate whatever you can do. the most important people who need the time are you and Holly. the rest of us will wait like patient little puppies for whatever information you can spare. And we’ll keep sending good vybes.

  7. by Cheryl, on 01.17.09 @ 7:39 am

     

    Edward and Holly,
    Sunflower Jennifer asked that someone from the list let you know that she is praying for you all.
    Cheryl

  8. by Janie, on 01.17.09 @ 8:28 am

     

    Hi Holly,

    You don’t know me but I have been praying for you for about six months. Someone at my church made a prayer request for you during our intercessary prayers. Your situation touched my heart. I am a new Christian but I want you to know that I will continue to pray for you every day until you are completely healed.

    Love your friend in Christ,

    Janie

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